I know it's been a long time since I have updated anything on Josh or the rest of us. Things have not changed a whole lot. Josh has certainly been making a very big effort to be more positive and try to change how he feels and things he does on his own since it seems as if his doctors have reached their limits.
He did have repeat MRI's (as he will every year) to make sure there are no changes or new developments. His neurology office was not too helpful when it came to the results, there were certainly things said that were not completely right, but we went back to a neuro-surgeon we say just over a year ago for a re-check. (He will get rechecked every year to make sure there are no changes)
Today was his apt and the doctor said his neuro exam has not changed much at all since last year, so that is good. He said things have really healed nicely and there is no need for any surgery right now. Bottom line is that things look good.
The MRI mentioned sinus issues and the surgeon said to go back to the ENT we saw last year for that. So we need to make an apt for that and maybe he can help with the snoring too, because we can not sleep in the same room together!!! It's not nice!
The surgeon also directed us to another doctor (in Mt Clemens, NOT Southfield) who is a physiatrist. He will see him mid Sept. This is a doctor who specializes in Physical Therapy and pain. YAY!! Maybe this is what we have been asking for! Josh really wants to get stronger and loosen up all at the same time! Hopefully this doctor will be able to help!!
Josh has a lot of trouble sleeping. He either can't sleep, or can't wake up! It's been very hard on him and everything. He is trying very hard to get off his pain meds, but honestly he will NEVER be pain free and learning to live with the pain is what he has to figure out. What is tolerable and what isn't? He keeps asking to stop taking many of his drugs and the doctor's don't seem to be listening to him, but maybe with some physical therapy and strength training he might start to feel better! He has been playing a lot more with the kids and trying very hard to be more a part of things.
He did have some stomach problems (very easily caused by all the drugs) and spent some time in the hospital in June/July. He was told to change some of the things he eats and continue to eat high fiber and all that with a new medication to coat his stomach. Hopefully adjusting/ stopping some of his meds will eventually help that too!
As for seizures, he was having quite a few after he came home from the hospital, but hasn't had any in weeks so that's good!
I go back to work in just over a week so he will be back to watching the kids twice a week. Both kids are doing very well. Emily is certainly learning how to be a hand full and be sassy! She has gotten much better with her potty training which is nice!! Billy is talking like crazy and certainly is a parrot at this point!! He is also sleeping in a big boy bed now instead of in the closed crib! It's been a struggle, he doesn't stay very well!!
Baby and I are doing well. I am feeling HUGE and the heat and humidity has been rough this summer so we have spent a lot of time at the cottage and on the beach! I am now in the 3rd trimester and he moves like crazy! A couple more months and Kainan Eric will be here!! My goal has been to get his room all together before I went back to work, but it's getting harder and harder to get anything done when it's been this hot! We'll see!
So that's the gist of what is going on with the Tonsor's. Hopefully more and more positive things will continue to happen!!
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