Ok so we have Josh off one of the anti-seizure meds and he is doing better. The hazyness it's so bad anymore and he's not forgetting where he is, and all that is getting better. So one down!
His neurologist doesn't want to mess with too much at once because it could be too much for him to take. So he goes back to see him again the beginning of Sept. (not soon enough for Josh but that's all we got!)
In the mean time he will be seeing his pain management guy and they have started tigger point injections. This is hopefully going to be just one part of getting him off the pain patch. THe doctors have told him that he CAN NOT just go off the pain meds alone. It's impossible. So they are going to plug away at it but it is going to take time!
Josh still has episodes/seizures (whatever you wanna call it) when he really over does it. He is certainly feeling a bit better. He has been really cleaning up the garage (HUGE pile of garabage this last week! YAY!!!). He has a neighbor kid that is suposed to help him get some of the other things done around the house (new gate, moving things around in the garage..). I am hoping the neighbor kid does do all this because it makes it easier when I can focus on the kids and things inside the house!!
Josh is all about cleaning up and getting rid of stuff (I don't know where that came from! I have been fighting for that for years now!). The lawyers are still working on our mortgage and the mortgage company is not wanting to change anything. We are hoping though that we can get out of this house one way or another (I should say we will be getting out of this house!). Reading in the newspaper about someone who was carjacked just around the corner, and the fact that a hosue down the street is in pre-forclosure, and the neighbors across the street have their house up for sale (short sale, 79,000) really doesn't make me want to stay here at all!!
The kids are doing well. Billy is getting SOOO big (almost 18lbs I think, the weight Emily was when she turned 1) and Emily is just talking up a storm!! She has also been helping me clean up and put clothes away and her toys away! I can only hope that continues!
As for me, I have been having a harder time being easy going about everything, but well it was bound to happen, I'm working on it! I am super happy though that Josh is cleaning and throwing away more. De-Clutter!! YAY!!!! Now if only the rain would stop and we would get some really nice warm weather so I can spend time on the beach I would be even more happy!
Josh still wants to be able to watch the kids when I go back to school (BIG money saver!) and he is now thinking it's not going to happen, but with everything I am seeing in him, I actually thinks he might be able to. I don't know only time will tell especially when they are going to be messing with his pain meds!
So I supose that's it for now. Still nothing on his social security and we are hoping that comes through soon!! We were told anytime between now and Oct! OCT!!! It better be sooner!
Thanks for all the thoughts and prayers!!
Friday, July 24, 2009
Friday, July 10, 2009
Family doctor agrees!
Josh is over medicated. At least his family doctor agrees about that point. He is backing him off of one of the anti-seizure drugs that he is taking. So far (since it was cut in half, just 4 days ago) things seem to be getting a bit better. Josh did tell me that he felt less 'lost' yesterday, so that's good. Hopefully after he sees his neurologist next week that we can get him off of more of his drugs and maybe start fresh and see what we have.
He sees a pain specialist on Monday and hopefully we can get him started on steroid shots and that will hopefully help with the pain so he can slowly go down and off the pain patch he is on.
Josh still wants to be able to watch the kids when I go back to work. I think it would be great but we have a long way to go before that will be able to happen. Maybe if we can get him off some of these drugs that throw him off, things might get better.
I will say it again, (which means I know what will happen in the next few days) I haven't seen a seizure in quite a few days. Of course the kids and I are up at the cottage this weekend and Josh is home with the dog. His plan is to at least sand the basement stairs to get them ready for painting. This way we don't have to worry about the paint on the stairs possibly having lead in it and the kids being exposed.
Emily went and had her blood drawn again yesterday and I am praying that her lead level has gone down. If not I am not sure what else to do about it!! She has been on iron supplements for 3 months and hopefully that did the trick!!!
Stay tuned!!!
He sees a pain specialist on Monday and hopefully we can get him started on steroid shots and that will hopefully help with the pain so he can slowly go down and off the pain patch he is on.
Josh still wants to be able to watch the kids when I go back to work. I think it would be great but we have a long way to go before that will be able to happen. Maybe if we can get him off some of these drugs that throw him off, things might get better.
I will say it again, (which means I know what will happen in the next few days) I haven't seen a seizure in quite a few days. Of course the kids and I are up at the cottage this weekend and Josh is home with the dog. His plan is to at least sand the basement stairs to get them ready for painting. This way we don't have to worry about the paint on the stairs possibly having lead in it and the kids being exposed.
Emily went and had her blood drawn again yesterday and I am praying that her lead level has gone down. If not I am not sure what else to do about it!! She has been on iron supplements for 3 months and hopefully that did the trick!!!
Stay tuned!!!
Monday, July 6, 2009
4th of July holiday
First I want to let everyone know that Josh does not know I have this blog. It is not that I am trying to keep things from him but he would rather I not share everyone with family and friends. He is embarrassed about all that is going on and the lack of control he has. Most people ask him and he will talk about it, but honestly this is the best way to keep everyone updated. I just ask that the blog not be mentioned to him to save on a lot of un-needed stress! Thank you ahead of time! One other thing if you ever have any questions or anything my e-mail is ctonsor1@yahoo.com!
Well we had another LONG weekend away from home. We were at the cabin in Cadillac from Thursday through Sunday. We then headed to the cottage for a night and came home this evening.
It was a rough weekend but there were some good times too. Josh is having a tough time right now. He has been having trouble with staying awake. He is always wanting to sleep or feeling completely exhausted. We are going to see our family doctor tomorrow and maybe he will have an idea. Ok lets see what else is going on with him,.....where do I start? Besides all the sleeping (which may be drug related) he is still having seizures and with those the left side of his body, face go numb and his face sags. It doesn't last forever but if he does come to, his speech is slurred and he gets confused easily. He is having more and more of his freezing spells where he just stops and is frozen. He says sometimes he is awake and realizes that he's frozen and can't move or talk or anything, but most of the time he isn't aware. He has also had some spells where he completely forgets where he is. He gets panicked and doesn't know where he is or where is he going. So far he only gets lost when it comes to places but not people. He still knows me and Emily and Billy and anyone else who is around, but he gets very upset because he can't tell where he is.
He did have a pretty bad spell (I'm still not sure what to call these things) on Sunday at the cabin. He was trying to help me pack up the car and he froze in the driveway. I was taking our tent down and he was by himself. He tried to write help on the ground with his cane because he couldn't move. I believe his sister saw him and got him inside the cabin where he melted down. He was unable to talk and was VERY upset. His mom gave him a pad of paper and pencil and he tried to fist write. He asked for me and I came in and tried to calm him down. His face was sagging and he was very distraught! He wanted Emily was I told him not until he calmed down. He was scared as I am sure any of us would be. He then had another seizure like thing and we was able to talk a little more as time went on and he calmed down. I am very greatful to the his family for helping us out with the kids this weekend, especially yesterday when I was packing up!
So who knows what is going on as usual. We are home now and he has PT tomorrow and Weds. He sees our family doctor tomorrow also and then the Henry Ford doctor on Thursday. He sees a pain specialist next week along with his neurologist. Someone, some where has to know what is going on. Or have an idea!! At least I will be around now for the next few apts with doctors and I can push them to try and answer some of this. Things have changed which means something has changed and waiting to just see what else happens is NOT an option!!
So anyway I look forward to (weather permitting) going to the zoo with Tracy and the boys on Weds. So at least I have something else to look forward to also!
I was excused from jury duty after sitting for 4 hours and being called for case. I just told the judge anything past that day I couldn't do because of all that was going on here at home and he was quick to excuse me! Nice man!!! :-)
Ok it's late and he has PT early so I am off to bed! Thanks again to everyone for all their support and prayers and help!! We are very greatful!!
Well we had another LONG weekend away from home. We were at the cabin in Cadillac from Thursday through Sunday. We then headed to the cottage for a night and came home this evening.
It was a rough weekend but there were some good times too. Josh is having a tough time right now. He has been having trouble with staying awake. He is always wanting to sleep or feeling completely exhausted. We are going to see our family doctor tomorrow and maybe he will have an idea. Ok lets see what else is going on with him,.....where do I start? Besides all the sleeping (which may be drug related) he is still having seizures and with those the left side of his body, face go numb and his face sags. It doesn't last forever but if he does come to, his speech is slurred and he gets confused easily. He is having more and more of his freezing spells where he just stops and is frozen. He says sometimes he is awake and realizes that he's frozen and can't move or talk or anything, but most of the time he isn't aware. He has also had some spells where he completely forgets where he is. He gets panicked and doesn't know where he is or where is he going. So far he only gets lost when it comes to places but not people. He still knows me and Emily and Billy and anyone else who is around, but he gets very upset because he can't tell where he is.
He did have a pretty bad spell (I'm still not sure what to call these things) on Sunday at the cabin. He was trying to help me pack up the car and he froze in the driveway. I was taking our tent down and he was by himself. He tried to write help on the ground with his cane because he couldn't move. I believe his sister saw him and got him inside the cabin where he melted down. He was unable to talk and was VERY upset. His mom gave him a pad of paper and pencil and he tried to fist write. He asked for me and I came in and tried to calm him down. His face was sagging and he was very distraught! He wanted Emily was I told him not until he calmed down. He was scared as I am sure any of us would be. He then had another seizure like thing and we was able to talk a little more as time went on and he calmed down. I am very greatful to the his family for helping us out with the kids this weekend, especially yesterday when I was packing up!
So who knows what is going on as usual. We are home now and he has PT tomorrow and Weds. He sees our family doctor tomorrow also and then the Henry Ford doctor on Thursday. He sees a pain specialist next week along with his neurologist. Someone, some where has to know what is going on. Or have an idea!! At least I will be around now for the next few apts with doctors and I can push them to try and answer some of this. Things have changed which means something has changed and waiting to just see what else happens is NOT an option!!
So anyway I look forward to (weather permitting) going to the zoo with Tracy and the boys on Weds. So at least I have something else to look forward to also!
I was excused from jury duty after sitting for 4 hours and being called for case. I just told the judge anything past that day I couldn't do because of all that was going on here at home and he was quick to excuse me! Nice man!!! :-)
Ok it's late and he has PT early so I am off to bed! Thanks again to everyone for all their support and prayers and help!! We are very greatful!!
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