Ok so most of you know Josh went into the hospital last week because he seemed super out of it and the left side of his face was all droopy.
They concluded that it was not a stroke (thank GOD!) but most likely Bells Palsy. He unfortunatly had to stay in the hospital one night because the doctors are annoying and not paying attention. He has a seizure and they gave him atavan and then valium. So not only was the left side of his face all droopy now he was super drugged up!
Anyway he came home Thursday and we headed for the cottage. Well it was an interesting weekend. Josh continued to have problems speaking clearly and his face would still kind of sag. He spent two days (Fri and Sat) going from one thing to the next like he was running on some energizer bunny motor. Sunday came and he slept most of the day, not staying awake for more than an hour or so at a time. Monday came and the same thing. We came home Monday night and he slept.
This morning he had PT and then he came home and slept. I'm not kidding, I'm not exaggerating, he was litterally only awake for about an hour at a time and then out for like 3! VERY frustrating. I do not know if it is the medication doing this or what, but I have told him he needs to call his doctors tomorrow and see what they say.
I have jury duty tomorrow! Yeah right like I need this right now!! Anyway I am very happy that Tracy will be here tomorrow to help Josh and the kids. I am praying that my day will be fast downtown and it will be all over with!!!
Ok so otherwise Josh is continuing with PT and it really is helping him. Obviously they are still playing with his meds, but I can say that he has not had a seizure in the last 3 days! Watch that change now because I actually wrote it down!! Always seems to happen that way!
Ok off to bed! I hope this is reaching everyone I really don't know who reads and who doesn't! Anyway thanks for all the thoughts and prayers!!!
Tuesday, June 30, 2009
Wednesday, June 17, 2009
Our Anniversary
Ok well it's our 4th anniversary and at least we didn't forget this year. He was so busy with work and I was just so happy to be done with school last year that we both forgot until much later in the day. We both remembered earlier this year, even though we still didn't really do anything for it. Josh was in too much pain today.
Josh had PT this morning and it seems like the treatments he is going through are helping. After going to the zoo on Sunday (for 4 hours and him walking the whole time) he realized he was starting to get some feeling back in his hands and lower legs and feet that he hasn't had in a long time. Now unfortunatly the feeling that is coming back is pain, but we'll go one thing at a time.
He continues to have seizure activity and the neurologist added another medication for him to take before taking him off another. He doesn't want to leave him with no seizure med until this new one is up to the correct dosage! The neurologist also believes that his seizures are physiological, and not psychological. He told Josh that epilepsy can manifest itself in multiple parts of the body, even the spine. SO....... he did say the seizures are absolutely not being cause by his brain, but are from somewhere else. So what does that mean? It basically means we have to try and find the best group of meds to help keep it under control.
Josh still has serious balance issues and his right leg is still having trouble keeping up with the rest of his body and responding the way it should. (according to the neurologist that is a side effect to epilepsy)
So I think that is the basics with Josh right now. It has really just become a part of daily life with the kids and me to see Josh have a seizure or two or however many. Emily likes to kind of just stand by him or tries to kiss him to wake him up when it happens. As soon as he is conscience again, she goes back to what she was doing.
As for Billy, he is 4 months old now and he is 15lbs 7 oz and 25 inches long! He's a chunker!!!
I am super thrilled to be done with school now! I do still have jury duty on July 1st but we have someone (thanks Tracy) coming to stay with Josh and the kids so I can just get it over and done with. Josh can take care of the kids (he is even doing more and more diapers, even poopy diapers!) the problem is if he has a seizure no one would be around to make sure he comes out of it and the kids are ok. So that is our dilema when it comes to Josh watching the kids all day when I am at work. He has stayed with one or the other while I have run up to the store or something, but not for a super long period of time, and most of the time which ever child is with him is usually sleeping.
Ok so that's it for now. As for what's next? I'm not totally sure. We are very hopeful with his therapy so that's good. I am not sure what the course of treatment/diagnosis is going to happen with the seizures. I think for now it's just figuring out the right meds.
The kids and I are doing great and honestly if anyone is around at all this summer please don't hesitate to come and distract Josh for awhile. He is having a lot of trouble with not being able to do everything he wants to or 'should' be doing. Come, visit, distract!! Thanks! Love, hugs, prayers to everyone who has been doing the same for us!!
Josh had PT this morning and it seems like the treatments he is going through are helping. After going to the zoo on Sunday (for 4 hours and him walking the whole time) he realized he was starting to get some feeling back in his hands and lower legs and feet that he hasn't had in a long time. Now unfortunatly the feeling that is coming back is pain, but we'll go one thing at a time.
He continues to have seizure activity and the neurologist added another medication for him to take before taking him off another. He doesn't want to leave him with no seizure med until this new one is up to the correct dosage! The neurologist also believes that his seizures are physiological, and not psychological. He told Josh that epilepsy can manifest itself in multiple parts of the body, even the spine. SO....... he did say the seizures are absolutely not being cause by his brain, but are from somewhere else. So what does that mean? It basically means we have to try and find the best group of meds to help keep it under control.
Josh still has serious balance issues and his right leg is still having trouble keeping up with the rest of his body and responding the way it should. (according to the neurologist that is a side effect to epilepsy)
So I think that is the basics with Josh right now. It has really just become a part of daily life with the kids and me to see Josh have a seizure or two or however many. Emily likes to kind of just stand by him or tries to kiss him to wake him up when it happens. As soon as he is conscience again, she goes back to what she was doing.
As for Billy, he is 4 months old now and he is 15lbs 7 oz and 25 inches long! He's a chunker!!!
I am super thrilled to be done with school now! I do still have jury duty on July 1st but we have someone (thanks Tracy) coming to stay with Josh and the kids so I can just get it over and done with. Josh can take care of the kids (he is even doing more and more diapers, even poopy diapers!) the problem is if he has a seizure no one would be around to make sure he comes out of it and the kids are ok. So that is our dilema when it comes to Josh watching the kids all day when I am at work. He has stayed with one or the other while I have run up to the store or something, but not for a super long period of time, and most of the time which ever child is with him is usually sleeping.
Ok so that's it for now. As for what's next? I'm not totally sure. We are very hopeful with his therapy so that's good. I am not sure what the course of treatment/diagnosis is going to happen with the seizures. I think for now it's just figuring out the right meds.
The kids and I are doing great and honestly if anyone is around at all this summer please don't hesitate to come and distract Josh for awhile. He is having a lot of trouble with not being able to do everything he wants to or 'should' be doing. Come, visit, distract!! Thanks! Love, hugs, prayers to everyone who has been doing the same for us!!
Wednesday, June 10, 2009
As for now......
Well Josh went and saw his family physician today. His doctor does not believe that his seizures are psychogentic as is the diagnosis from Henry Ford. (now all of this is being reported to me by Josh). His doctor feels that because they can not find a reason for the seizures as of now, that is why they are turning to the psychogentic diagnosis.
His family doc also believes that because of one of the meds he is on it is counter acting some of the pain meds and that is causing him to have more pain. It is suggested that he talk with his neurologist about it and possibly see the pain specialist in with his Neurologist again.
Josh goes and sees his neurologist on Monday and we will wait and see what he thinks of all of this.
Josh continues to have PT twice a week and it really wipes him out. He has had a few seizures the last few nights as I am getting Emily ready for bed. He was able to cut the grass last night though even though he ended up having 3 seizures in a row after he was done with that.
Josh has started having a few issues with his legs not responding and causing him to fall. Hopefully he will remember to bring that up to his neurologist Monday also. He goes to stand up or walk and occasionally his legs do not listen and they don't move but he does.
I am almost done with school (Thank GOD!) and Monday will be my last work day and summer here we come! I will be able to drive Josh to his apts after Monday which should make him feel better. He feels like a drain on most people but at least I signed up for the better or worse stuff!! :-)
As for the kids, they are doing so well! Emily can not wait for it to be warm enough to go play at the beach! She is starting to get her canine teeth now, but they don't seem to bother her tooo much! Billy is growing like crazy. He's getting so big! He will be 4 months tomorrow and we have his apt next week also. I just started him on cereal at night the last few nights and he seems to love it! Emily was trying to help feed him the other night and wanted a bite of the cereal. (rice cereal) So I gave her a little bit and she almost threw up on me! It was funny to see her react that fast!
Thank you for all the thoughts and prayers! We are hoping to have social security by the end of the summer, but it's not like the government works very fast!
I'll update more Monday or so after his apt with the neurologist!
His family doc also believes that because of one of the meds he is on it is counter acting some of the pain meds and that is causing him to have more pain. It is suggested that he talk with his neurologist about it and possibly see the pain specialist in with his Neurologist again.
Josh goes and sees his neurologist on Monday and we will wait and see what he thinks of all of this.
Josh continues to have PT twice a week and it really wipes him out. He has had a few seizures the last few nights as I am getting Emily ready for bed. He was able to cut the grass last night though even though he ended up having 3 seizures in a row after he was done with that.
Josh has started having a few issues with his legs not responding and causing him to fall. Hopefully he will remember to bring that up to his neurologist Monday also. He goes to stand up or walk and occasionally his legs do not listen and they don't move but he does.
I am almost done with school (Thank GOD!) and Monday will be my last work day and summer here we come! I will be able to drive Josh to his apts after Monday which should make him feel better. He feels like a drain on most people but at least I signed up for the better or worse stuff!! :-)
As for the kids, they are doing so well! Emily can not wait for it to be warm enough to go play at the beach! She is starting to get her canine teeth now, but they don't seem to bother her tooo much! Billy is growing like crazy. He's getting so big! He will be 4 months tomorrow and we have his apt next week also. I just started him on cereal at night the last few nights and he seems to love it! Emily was trying to help feed him the other night and wanted a bite of the cereal. (rice cereal) So I gave her a little bit and she almost threw up on me! It was funny to see her react that fast!
Thank you for all the thoughts and prayers! We are hoping to have social security by the end of the summer, but it's not like the government works very fast!
I'll update more Monday or so after his apt with the neurologist!
Friday, June 5, 2009
June 5, 2009
I haven't done much on here lately because not much has changed. Josh has been able to do more and is working really hard to keeping up with that. He wakes up in the morning and gets Emily ready for me which is a huge help. He usually stays up and tries to do something.
As far as I have seen he has only had a few small seizures that I have not really told him about. They were happening because he was very tired and pushing himself. As we already know they happen much more fequently when he is tired.
He met with the psychologist yesterday and goes back in a few weeks. They have not found out exactly why is he having the seizures, but we are kind of just moving on from that and focusing on his physical therapy. He still goes twice a week and they are increasing the amount of time he has been there and I think it's helping him. He still has balance issues and has to walk with his canes to feel more steady!
Last weekend we were at the cottage and Josh helped to cut the grass. It was a good two hours of walking and cutting grass for multiple houses and he did a great job. He was completely spent after that though! I try not to tell him he can't do something. If he feels like he can then I say go for it!
As for the kids and I we are doing great. I am almost done with school which will be wonderful! 5 more days with students and 1 more work day after that! I plan on bringing the kids with me to work that last work day (since it's Monday), and I just hope that it won't be too much for Emily!
As far as I have seen he has only had a few small seizures that I have not really told him about. They were happening because he was very tired and pushing himself. As we already know they happen much more fequently when he is tired.
He met with the psychologist yesterday and goes back in a few weeks. They have not found out exactly why is he having the seizures, but we are kind of just moving on from that and focusing on his physical therapy. He still goes twice a week and they are increasing the amount of time he has been there and I think it's helping him. He still has balance issues and has to walk with his canes to feel more steady!
Last weekend we were at the cottage and Josh helped to cut the grass. It was a good two hours of walking and cutting grass for multiple houses and he did a great job. He was completely spent after that though! I try not to tell him he can't do something. If he feels like he can then I say go for it!
As for the kids and I we are doing great. I am almost done with school which will be wonderful! 5 more days with students and 1 more work day after that! I plan on bringing the kids with me to work that last work day (since it's Monday), and I just hope that it won't be too much for Emily!
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