I know it's been a long time since I have typed anything about anything going on with Josh. Since we moved things are good. Well relatively good. I know I am less stressed being closer to work and I know the kids LOVE our new house. Josh will always find something he would want to change, but I know it's still so much better than where we were.
Just about a month ago Josh made the decision that he WILL get of his cane by the end of the summer and walk without any assistance. Well in the same breath he is having a very hard time controlling his pain. It is taking over again and he is trying to figure out what is wrong. Of course he thinks something is MAJORLY wrong, but that's Josh. He is always thinking the worst! BUT, I have to say that I can tell a difference in him and so I was actually able to go to an apt with him during my Spring break and the neurologist changed his medication and doubled one of his medications that they still can't ever tell me why they want him on it. So now he's on double the dose and he reminds me of epileptic kids I have come across that are on some VERY heavy drugs! He has an even harder time remembering things (even though he will argue about things that happen), keeping his thoughts straight, walking, staying awake (even though he says he doesn't sleep at all), and his snoring is BEYOND horrible (which is probably why he feels like he isn't getting any sleep). (As I type this he has been sleeping since 1pm this afternoon and was up for about 10 mintues when I got home with the kids, and it's 8:30pm!)
I know we are both getting very frustrated with the doctor's just throwing more and more medication at him instead of what? I don't know but something!
He is going to have another MRI just to make sure nothing has changed in his head. I know his headaches have not gone away and have gotten worse and he frequently feels a lot of pressure! So we will see.
Josh also recently found out that his old company that he worked for (Uncle Ed's) would really like to have him back. That's great and he really wants to go back to work and feel like he's more useful (even though he does watch the kids 2 days a week), and it would make things a lot easier for me if he had something else to do, but I just don't know if he could physically handle it right now.
He still had seizures ( maybe 2 a week) and has started having black out episodes if he is out and starts to get anxious. So there is so much more to him going back to work than it probably seems. He can talk a GREAT game, but the day to day things can really wipe him out, or stress him out to the point where he is completely useless.
Our biggest hurddle right now is going to be this medication thing. Between the pain meds and the other medication they keep increasing it seems like the doctor;s are trying to comatose him!!!
So anyway for now that is what is going on with him. There are a few other tests he needs to go for and I know it won't get done until I finally schedule it, which is going to be easier for me to do once I am out of school!
As for me I am now 14 weeks pregnant and hoping the morning sickness will go away anyday now. Emily is doing good and we are still trying to get her potty trained but she is a VERY strong willed child! Billy is cutting teeth left and right and walking like a champ now!! The two of them LOVE to play together which is really nice!!
No comments:
Post a Comment