Memorial Day weekend

Well the weekend went very well. Josh helped my dad work on the golf cart at the cottage. He did a lot of walking too with the dog and the kids and I. He did really well considering he was coming off being in bed for 8 days. He had a few seizures but nothing too bad. He seemed to have them after spending a long time focusing on doing something and it happens when he starts to relaxe. This is what we all have noticed in the past too. So maybe with more strength will come less seizures!

Josh would really like to be able to take care of the kids when I go back to school in the fall. He isn't too thrilled thinking about the poopy diapers, but when it would save us a tremendous amount of money he says he will deal with it. The main thing though is that he needs to have his strength up and needs to be more sure on his feet. He still gets dizzy spells and it throws off his balance.

Josh keeps telling me that he can't wait until I am done with work for the summer so he can be with the kids all the time and not miss anything. He really feels like he missed a lot being in the hospital that long and away from the kids. Emily is growing up so fast and Billy is right behind and he doesn't want to miss a minute of it!

He will continue to have PT twice a week for a few weeks. He would love to cut it down to just once a week right now, but he needs it to re-gain his strength from his bed stay. I told him he needs to go twice this week and possibly next week, then he can consider (after talking with his PT) going down to once a week. He is so worried about running out of visits that are covered by insurance that he isn't focusing enough on what he needs.

Josh really feels like he is looking bad to everyone and he is trying so hard to just be normal and do everything he can, he doesn't always want to believe that he can't do what he wants. He spent a lot of time sleeping this weekend, but he would also go for some pretty long walks so, as time goes on he will get more and more strong and hopefully there will be less time sleeping and less seizures! We will continue to work with the doctors for the best course of treatment!

Ok that's it for now! THank you all again!!