Well Josh is out of the hospital. He is back to trying to keep the nausea under control. He was not given his anti-nausea pill while in the hospital and he has horrible motion sickness. As long as he takes his pill though he does ok.
He is noticing he gets tired extra fast right now, but he did spend 8 days in bed. They did not let him get out of bed so I'm sure it will take awhile for him to build up some of the little strength he has.
He does have to follow up with a couple doctors now and figure out exactly what needs to be done at this point. We do know he is going to be working with someone to try and figure out what is triggering the seizures. They still don't know, but there is no reason to keep him in the hospital to try and figure that out. He will be following up with his neurologist in a few weeks.
He goes to physical therapy twice next week and needs to get back on track with that. Hopefully he will have more strengthening exercises and the hope is he can get more secure on his own two feet.
We are still working with the social security lawyers to get all that done, but it is not a quick process. We are hoping that things may get sped up soon since we have proof of seizures and that they are not able to be controlled as of yet. We just need doctors to state all that.
We are all looking forward to spending the long weekend at the cottage! We are also looking forward to school being over (only 14 student days left, + 1 teacher day). It will be nice to have a good break of no daycare cost! The kids are doing well though and that is important!
We are hoping to spend time at the cottage in Lexington and the cabin in Cadillac. I have jury duty July 1st, but I may have to take the kids with me! That would get me out of it I would imagine!!! We are planning on going to the cabin for the 4th of July get together.
Hopefully something will start to happen soon, (social security, mortagage modification that we are working on also, PT, finding seizure triggers) so we can try to have as normal of a summer as we can!
I will continue to update this when I have more to share.
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