Where it all began.

It all started with a day he didn't remember. He believes he fell outside but doesn't completely know. He had seizure like activity in the doctor's office that night and the doctor called 911 and sent him to the hospital. This was December 3.

Finally on December 5th we had a diagnosis because Josh insisted on having an MRI of his neck. He has a Chiari Malformation. Josh had brain surgery December 15th. The bone of the skull is too tight around the cerabellum so his brain was protruding about 2cm out of his skull and pushing on the spinal cord.
He had surgery to make room for his brain and he came out of it GREAT!! He had no more headache, he had feeling back in all his limbs, all his seizure activity went away, everything seemed to be going great.

(December 29th) Then came the morning where he woke me up getting sick everywhere and having a temp over 100 degrees. He spent 10 days back in the hospital and no one ever confirmed that he had menegitis or not, but they treated him for it anyway. OK GREAT communication! He came home on IV antibiotics and we were hoping things were going to get better. Unfortunatly he had the headache back, numbness in his limbs was creaping back, he was VERY dizzy and was only able to walk with a walker. He felt sick all the time and was in a lot of pain.

He continued with at home PT and OT. Pain continued. Seizure episodes started to come back.

We went for a 2nd opinion to another surgeon because we felt that something was just not right. That surgeon ordered a bunch of tests which came back saying that surgically he was doing well. That was just last week.

The neurologists had also ordered some tests to try and fingure out what is going on. We have found out he is not having true seizures. They are called pseudo seizures. Something else is causing them (pain, stress, whatever).

We have determined though that he can't go back to work. (Big Shock!) We have filed for social security and hopefully he will not be denied and we won't have to wait too long. But we are dealing with the government!