Saturday, April 11, 2009

Cottage

Well we have had an interesting week. (My last week off too before I go back to work!) We have found a new machine that is helping Josh with his pain! YAY!!! He has a TENS unit here at home (as long as insurance pays for it we get it keep it, otherwise in 2 months we have to send it back!) and he has only used it on his lower back so far and it's helping him tremendously! He has been taking MUCH less vicodin. Hopefully this will lead to lowering the morphine patch he's on too!!

Josh has been getting VERY stir crazy and is having a hard time being locked up in the house. SOOOO, when we went to the doctor this week a deal was agreed to. (between the doctor, me, and Josh). To try and help lift his mood he is at our cottage in Lexington for the weekend by himself. The kids and I went and dropped him off yesterday after one of his apts and he has called to check in as he agreed to. So far he seems sooo happy he's up there away from the city and not in our living room! I will be picking him up most likely on Monday since he has PT, OT and a nurse coming on Tuesday! We are really hoping that this helps to motivate him to do some more things around the house at his own pace!

He does still get very tired very fast. His neck and shoulder muscles are still pretty locked up which keeps him from being fully fuctional, along with the seizures. He had two on Thursday. We still don't know what is causing them. Until all of that is under control he will be unable to work. He is also not allowed to drive for a 1 year after his most recent seizure! This is going to be a big problem if we don't get those under total control. Social security is looking like it should be an easy fight, but you never know with the government!

Ok lets see what else this week...... He had the first of two visits for his full body EMG. This is the test that will tell us if there is nerve damage. He also finished his neuropsych exam this week and the doctor had him re-do part of it because he seemed to be functioning so much faster. (amazing what happens when you don't feel like throwing up constantly!)

Well I think we are taking more steps forward than backwards now. It's more like 3 steps forward and 1 back at this point instead of 2 and 1. I am looking forward to the summer! Josh wants to go to the cottage a lot and his cabin in Cadillac a lot! As long as we can travel to those places (despite our car and gas) I think it will really help Josh to recover more and more! I'm super excited for Emily to have a great summer at the cottage, cabin, and the zoo! She's getting so big!!! and she's soo smart! (I know I'm bias, but I should be!)

Thank you to everyone who has helped us out along the way in any capacity! We (I) would be as together as I think we are without all the support!

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