I supose this is a bit long over due...
      We try very hard to just keep things as normal as possible for everyone, however some new things or I supose the best way to put it is a change in things. 
     Josh has become very active in the sportsman club near our house which is good and gives him something to do and other people to talk to.  He does watch the boys 3 days a week and takes Emily to and from school.  He has been asking his doctors for a long time to wean him off his pain meds because he hates how he feels on them, he would rather deal with the pain.  His doctors have not been too accepting of his want to be off his meds.  He is still have seizures and the guess is they are deep brain seizures because he will get pain in his groin before it completely over takes him and according to the neurologist, that's a sign of deep brain seizures...... BUT who really knows!
     This fall he ended up in the hospital because of rapid onset blindess.  He spent 4 or 5 days in the hospital (I think, my memory is not the greatest with all this anymore) and was diagnosed with cluster headaches.  He did follow up with a neuro-opthamologist who was very concerned about his eyes and suggested his brain may be pushing on his optic nerves.  He was prescribed oxygen to help with the cluster headaches and it does help at times.  He continues to have trouble with his eyes; double vision, vision loss, blurred vision.  His neurologist is at a loss.......
     Last year we noticed some hard lumps all over his body and he was supposed to have them removed/ or biopsied, but it never happened.  The conclusion was made that his lymphnodes are swelling and turning hard and he needed to follow up...... He never did.  His family doctor sent him to an Infectious disease doctor who is now sending him for multiple tests and he will be getting a full GI worked since he is also passing a lot of blood at times.  The lymphnodes are certainly causing trouble because last week he had severe pain in both arms, the veins in his arms buldged and both arms became rock hard.  When that finally passed he didn't have use of his arms for many hours.  So what's going on??  We really don't know, and it doesn't seem like anyone else knows either.  The infectious disease doctor ranked her choices for posibilities: 1. a virus of some kind compromising his immune system, 2. cancer, or 3 bacterial infection of some kind.
     So needless to say things have not really calmed down around here.  I am still working on my PhD and will be finishing up the school year soon and will be going to Florida for a conference in June with a few other teachers.  Josh and the kids will be staying home without me for 4 days!  Emily is loving school and will be in kindergarten next year at my school.  The boys are getting big and loud!!  :-)

Thank you to all of you who have listened and continue to listen to me complain and get all this off my chest.  I will update again if/when I get information on what's going on!