First I want to let everyone know that Josh does not know I have this blog. It is not that I am trying to keep things from him but he would rather I not share everyone with family and friends. He is embarrassed about all that is going on and the lack of control he has. Most people ask him and he will talk about it, but honestly this is the best way to keep everyone updated. I just ask that the blog not be mentioned to him to save on a lot of un-needed stress! Thank you ahead of time! One other thing if you ever have any questions or anything my e-mail is ctonsor1@yahoo.com!
Well we had another LONG weekend away from home. We were at the cabin in Cadillac from Thursday through Sunday. We then headed to the cottage for a night and came home this evening.
It was a rough weekend but there were some good times too. Josh is having a tough time right now. He has been having trouble with staying awake. He is always wanting to sleep or feeling completely exhausted. We are going to see our family doctor tomorrow and maybe he will have an idea. Ok lets see what else is going on with him,.....where do I start? Besides all the sleeping (which may be drug related) he is still having seizures and with those the left side of his body, face go numb and his face sags. It doesn't last forever but if he does come to, his speech is slurred and he gets confused easily. He is having more and more of his freezing spells where he just stops and is frozen. He says sometimes he is awake and realizes that he's frozen and can't move or talk or anything, but most of the time he isn't aware. He has also had some spells where he completely forgets where he is. He gets panicked and doesn't know where he is or where is he going. So far he only gets lost when it comes to places but not people. He still knows me and Emily and Billy and anyone else who is around, but he gets very upset because he can't tell where he is.
He did have a pretty bad spell (I'm still not sure what to call these things) on Sunday at the cabin. He was trying to help me pack up the car and he froze in the driveway. I was taking our tent down and he was by himself. He tried to write help on the ground with his cane because he couldn't move. I believe his sister saw him and got him inside the cabin where he melted down. He was unable to talk and was VERY upset. His mom gave him a pad of paper and pencil and he tried to fist write. He asked for me and I came in and tried to calm him down. His face was sagging and he was very distraught! He wanted Emily was I told him not until he calmed down. He was scared as I am sure any of us would be. He then had another seizure like thing and we was able to talk a little more as time went on and he calmed down. I am very greatful to the his family for helping us out with the kids this weekend, especially yesterday when I was packing up!
So who knows what is going on as usual. We are home now and he has PT tomorrow and Weds. He sees our family doctor tomorrow also and then the Henry Ford doctor on Thursday. He sees a pain specialist next week along with his neurologist. Someone, some where has to know what is going on. Or have an idea!! At least I will be around now for the next few apts with doctors and I can push them to try and answer some of this. Things have changed which means something has changed and waiting to just see what else happens is NOT an option!!
So anyway I look forward to (weather permitting) going to the zoo with Tracy and the boys on Weds. So at least I have something else to look forward to also!
I was excused from jury duty after sitting for 4 hours and being called for case. I just told the judge anything past that day I couldn't do because of all that was going on here at home and he was quick to excuse me! Nice man!!! :-)
Ok it's late and he has PT early so I am off to bed! Thanks again to everyone for all their support and prayers and help!! We are very greatful!!
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