Our Anniversary

Ok well it's our 4th anniversary and at least we didn't forget this year. He was so busy with work and I was just so happy to be done with school last year that we both forgot until much later in the day. We both remembered earlier this year, even though we still didn't really do anything for it. Josh was in too much pain today.

Josh had PT this morning and it seems like the treatments he is going through are helping. After going to the zoo on Sunday (for 4 hours and him walking the whole time) he realized he was starting to get some feeling back in his hands and lower legs and feet that he hasn't had in a long time. Now unfortunatly the feeling that is coming back is pain, but we'll go one thing at a time.

He continues to have seizure activity and the neurologist added another medication for him to take before taking him off another. He doesn't want to leave him with no seizure med until this new one is up to the correct dosage! The neurologist also believes that his seizures are physiological, and not psychological. He told Josh that epilepsy can manifest itself in multiple parts of the body, even the spine. SO....... he did say the seizures are absolutely not being cause by his brain, but are from somewhere else. So what does that mean? It basically means we have to try and find the best group of meds to help keep it under control.

Josh still has serious balance issues and his right leg is still having trouble keeping up with the rest of his body and responding the way it should. (according to the neurologist that is a side effect to epilepsy)

So I think that is the basics with Josh right now. It has really just become a part of daily life with the kids and me to see Josh have a seizure or two or however many. Emily likes to kind of just stand by him or tries to kiss him to wake him up when it happens. As soon as he is conscience again, she goes back to what she was doing.

As for Billy, he is 4 months old now and he is 15lbs 7 oz and 25 inches long! He's a chunker!!!

I am super thrilled to be done with school now! I do still have jury duty on July 1st but we have someone (thanks Tracy) coming to stay with Josh and the kids so I can just get it over and done with. Josh can take care of the kids (he is even doing more and more diapers, even poopy diapers!) the problem is if he has a seizure no one would be around to make sure he comes out of it and the kids are ok. So that is our dilema when it comes to Josh watching the kids all day when I am at work. He has stayed with one or the other while I have run up to the store or something, but not for a super long period of time, and most of the time which ever child is with him is usually sleeping.

Ok so that's it for now. As for what's next? I'm not totally sure. We are very hopeful with his therapy so that's good. I am not sure what the course of treatment/diagnosis is going to happen with the seizures. I think for now it's just figuring out the right meds.

The kids and I are doing great and honestly if anyone is around at all this summer please don't hesitate to come and distract Josh for awhile. He is having a lot of trouble with not being able to do everything he wants to or 'should' be doing. Come, visit, distract!! Thanks! Love, hugs, prayers to everyone who has been doing the same for us!!